Saturday, May 21, 2005


Have you ever experienced fatigue so great that just the THOUGHT of getting out of bed is almost too much to bear? Now, try joining that fatigue with insomnia, and you have the stuff that drives folks crazy!

Welcome to the world of those of us with neurological diseases. Mine is Multiple Sclerosis. As I type this, it is after 4:00pm, and I just had breakfast! No, I am not a vampire, and I went to bed at Midnight; I just tossed and turned for over 6 hours, trying to get to sleep!

Fatigue - the thought of paying bills; the thought of just getting dressed; taking a shower and washing hair tires me out for an entire day. How does one learn to manage these symptoms? This symptom management, sharing ideas with others in similar situations, is what this blog is all about.

Each different blog will have its own title, and will cover different "situations", thoughts, and other ideas, for us all. For, the more we know, the better off we are in getting out of each day, the qualify of life that we all want.

So, fatigue. How to manage it. First of all, learn your own body's needs. If you have to sleep all day, and are up all night, so be it! Don't fight it. Fighting it just makes the insomnia worse. What I have found is that after one day like this, I'm so tired the next night that I can get a "more normal" sleep cycle.

Next, I've found that if you "listen" to your body, you can figure out why your body does't want to sleep. In my case, the muscles and joints ache. By keeping a diary, like this, and sharing it with my Doctors, they have been able to get me prescriptions to help. For muscle and joint aches, I swear by Baclofen!!!. Without my daily doses of baclofen, even my teeth ache.

For the tingles and numbness - the feelings like ants are crawling on your skin - Neurontin (Gabapentin is the generic brand) is great.

Let's face it; giving in to fatigue is not an option. Learning how to better manage fatigue's symptoms will allow you to live a better life.

Now that I've got this out of my system, I'll go take a shower and wash my hair. More later!

If you have additional comments and/or questions about Fatigue, please add to this blog.

Qualifying for Social Security Disability Insurance (SSDI)

Greetings! My name is Carolyn Magura, and my website is I have been on Long Term Disability (LTD) since 2001, and on Social Security disability Insurance (SSDI) since about 2002. While most folks who apply for SSDI are turned down about 60% of the time in their first try, and about 80% in their second try, I was the first person in my state to qualify for coverage the first time around, in under 30 days!!!

What, you say, is my illness/disease? Good question. It could have been anything, for the process I use, and am committed to helping others succeed with, works with ANY disease/illness. Mine is Multiple Sclerosis. I have had MS for over 45 years - misdiagnosed for most of those years - and am finally in what is called the secondary progressive stage.

This Blog is my way of sharing my thoughts, feelings and ideas with others who are travelling similar paths. I'd love to hear your opinions and thoughts too. For help with your situation, go to the website: